two daughters with elder mother

About the
New York State Caregiving
& Respite Coalition

The New York State Caregiving & Respite Coalition, NYSCRC, is a partnership of dedicated organizations and individuals committed to supporting the millions of our state's family caregivers. NYSCRC members understand the unique needs of caregivers. Through training and education, we focus on increasing caregivers' access to respite resources. And we speak with a unified voice to gain the attention of policymakers for the needs of family caregivers. 

With funding from the federal Lifespan Respite Grant, NYSCRC is training hundreds of volunteer respite providers throughout New York State.  Greater availability to respite services will give caregivers more frequent breaks while helping them better manage the physical and emotional stresses that come with caring for an aging and/or disabled loved one. 

By supporting important initiatives, like volunteer-based respite, NYSCRC takes an active role in improving the lives of informal caregivers. 

Lifespan Respite Care Program

What are State Respite Coalitions? - ARCH National Respite

Factsheet Lifespan Respite Care_2018

NYS Lifespan Respite Grant - 2014-2017

NYS Lifespan Respite Grant - 2017-2020

NYSCRC currently has funding for Lifespan Respite Grant through 2023.

NYSCRC received a Lifespan Respite Enhancement Grant for 2021 -2026 to develop a Caregiver Wellness and Respite Center Pilot in partnership with SUNY Plattsburgh.

Lifespan Respite Sustainability

In 2018 The New York State Caregiving and Respite Coalition began a Sustainability Planning Process. The work began with a Respite Sustainability Retreat with participation from the Lifespan Respite Core Team; New York State Office for the Aging (NYSOFA), Lifespan of Greater Rochester, and Monroe County Office for the Aging. We began the process using the ARCH Sustainability Toolkit. A Logic Model was developed, and planning began for the first Sustainability Summit in partnership with the ARCH National Respite Technical Assistance Center.

Retreat Agenda | Logic Model

2018 Summit Goal: to connect policymakers, researchers, family caregivers, and statewide partners to exchange knowledge and expertise, leading to the development of a statewide strategy for strengthening the respite care system for all individuals and caregiver, across the lifespan.

2018 Summit Purpose: to strengthen state and community partnerships to sustain New York’s Lifespan Respite activities; develop strategies to maximize use of existing respite resources; identify and leverage new respite funds; engage in sustainability planning; and generate innovative activities for future development. Read the Executive Summary Here

The Core Team reconvened in August of 2019 for Retreat II to review previous work and develop a financing plan with a Financing Strategies Logic Model. Retreat II Final Report | Financing Strategies Logic Model

In 2021 a Sustainability Summit was held in a virtual format; the Summit objectives were to:

  • Identify state-level policy and program needs related to respite care services for children, adults, and an aging population to increase advocacy capacity.

  • Strengthen state and community partnerships for advocacy efforts for caregivers across the lifespan.

  • Develop strategies to build advocacy capacity in the NYS Caregiving and Respite Coalition. Summit Agenda | Summit Recording AM | Summit Recording PM