Director - ARCH National Respite Network and Resource Center
ARCH is funded by the US Administration for Community Living. She has served on numerous national advisory boards, including her current role on the National Advisory Council to the federally funded Family Support Research & Training Center. Ms. Kagan represents ARCH on several prominent national coalitions, including the newly formed core advisory group to the Assisting Caregivers Today (ACT) Congressional Caucus and the National Child Abuse Prevention Partners of the Children’s Bureau. She is co-chair of the Elizabeth Dole Foundation’s Respite Impact Council of the Military Caregivers Coalition, co-chair of the Autism, Developmental Disabilities and Family Support Task Force of the Consortium for Citizens with Disabilities, and facilitator of the national Lifespan Respite Task Force.
Prior to this, Ms. Kagan served as deputy staff director and as professional staff for ten years to the Select Committee on Children, Youth, and Families in the U.S. House of Representatives. She also worked as a policy consultant to national disability, aging, and child health organizations for more than 15 years.
Ms. Kagan received her masters in public health in maternal and child health from the University of North Carolina at Chapel Hill, and her bachelor's degree from Brandeis University, Waltham, Massachusetts.
Daphne Johnston will be presenting on the journey of the Respite Ministry at the First United Methodist Church in Montgomery Alabama
Daphne has been involved in senior administration for 15 years and currently leads the Respite Ministry in Montgomery, Alabama. The Respite Ministry serves over 200 people with Alzheimer's disease and dementia and includes 120 dementia trained volunteers from eight different churches and two synagogues. Ms. Johnston's volunteer model of care has drawn the attention of the University of Alabama's School of Medicine as they work to partner with other volunteer programs around the southeast United States. Ms. Johnston is an advocate for those living with memory loss and has made it her personal mission to help families, clergy and professionals better understand that trained volunteers can be the heart of community Alzheimer's programs. Ms. Johnston holds a bachelor's degree in sociology from Lagrange College and received her MA in Gerontology and Public Administration from the University of West Georgia.
This ministry a shining example of how one congregation has found the beauty, value, the meaning and purpose of an adult respite ministry.
Just one person with passion and vision can make all the difference for people of all level of abilities and their caregivers, while at the same time transforming a faith community.
The ministry charges $30 a day to support the program.
Daphne says, "not everyone can pay, but there are plenty that can - and they pay for those who can't!"
The ministry has received several donations of more than $25,000 each. "Not everyone can volunteer but there are still many who want to help in anyway they can."
"You are just not in the cool crowd, if you are not doing respite."
The Neurology Department at UAB (University of Alabama at Birmingham) is establishing a formal partnership with the respite ministry and has referred more than 30 clients because there has been a significant increase in scores on the mini mental exam of patients who attend the program.